Cookies help us to understand how you use our website so that we can provide you with the best experience when you are on our site. To find out more, read our privacy policy and cookie policy.
Manage Cookies
A cookie is information stored on your computer by a website you visit. Cookies often store your settings for a website, such as your preferred language or location. This allows the site to present you with information customized to fit your needs. As per the GDPR law, companies need to get your explicit approval to collect your data. Some of these cookies are ‘strictly necessary’ to provide the basic functions of the website and can not be turned off, while others if present, have the option of being turned off. Learn more about our Privacy and Cookie policies. These can be managed also from our cookie policy page.
Strictly necessary cookies(always on):
Necessary for enabling core functionality. The website cannot function properly without these cookies. This cannot be turned off. e.g. Sign in, Language
Analytics cookies:
Analytical cookies help us to analyse user behaviour, mainly to see if the users are able to find and act on things that they are looking for. They allow us to recognise and count the number of visitors and to see how visitors move around our website when they are using it. Tools used: Google Analytics
Social media cookies:
We use social media cookies from Facebook, Twitter and Google to run Widgets, Embed Videos, Posts, Comments and to fetch profile information.
In May and June 2023 we invited patients and the public to take part in our research to understand how people feel about their personal data being used as secondary data when there are clear safeguards and demonstrable public benefit. A total of 185 patients and public took part in the online survey and through speaking to a member of our team via a telephone call.
The majority of participants, over 84 per cent, would feel comfortable and confident with their data being shared across the system when used to improve health outcomes. A small number of participants told us they had concerns about sharing any personal information data.
There is a clear sense that people want appropriate safeguards and a demonstrable public benefit when their data is shared and used and reassurance that their information will not be sold on to third parties for commercial use. The highest level of concerns were around reidentifying patient data.
The following would support the sharing of data in Kent and Medway:
Align this piece of work with NHS England work around awareness on secondary uses of data
Provide reassurance to patients and public about the safeguards used to protect personal data through de-personalisation and access requirements
Give information of ways of opting out of having your data used
Continue raising awareness around secondary uses of data including how it’s used and in what circumstances
Share this report on Kent & Medway ICB website and other appropriate communication channels
Continue to uphold the highest standards of data management, in terms of how we store, secure, analyse, manage, and allow internal and external access to data
Ensure staff are trained and supported to maintain the highest standards of data protection, reinforced by robust data management processes and governance
In line with NHS England we will ensure we have the right technologies in place to protect data and to enable the effective delivery of its services
Continue working alongside existing forums to include NHS providers, patient groups, Healthwatch and other partners in Kent and Medway to keep them updated and informed on the use of secondary data
Thank you to everyone who contributed to this work.
In May and June 2023 we invited patients and the public to take part in our research to understand how people feel about their personal data being used as secondary data when there are clear safeguards and demonstrable public benefit. A total of 185 patients and public took part in the online survey and through speaking to a member of our team via a telephone call.
The majority of participants, over 84 per cent, would feel comfortable and confident with their data being shared across the system when used to improve health outcomes. A small number of participants told us they had concerns about sharing any personal information data.
There is a clear sense that people want appropriate safeguards and a demonstrable public benefit when their data is shared and used and reassurance that their information will not be sold on to third parties for commercial use. The highest level of concerns were around reidentifying patient data.
The following would support the sharing of data in Kent and Medway:
Align this piece of work with NHS England work around awareness on secondary uses of data
Provide reassurance to patients and public about the safeguards used to protect personal data through de-personalisation and access requirements
Give information of ways of opting out of having your data used
Continue raising awareness around secondary uses of data including how it’s used and in what circumstances
Share this report on Kent & Medway ICB website and other appropriate communication channels
Continue to uphold the highest standards of data management, in terms of how we store, secure, analyse, manage, and allow internal and external access to data
Ensure staff are trained and supported to maintain the highest standards of data protection, reinforced by robust data management processes and governance
In line with NHS England we will ensure we have the right technologies in place to protect data and to enable the effective delivery of its services
Continue working alongside existing forums to include NHS providers, patient groups, Healthwatch and other partners in Kent and Medway to keep them updated and informed on the use of secondary data
Thank you to everyone who contributed to this work.
